The IRI goes to Washington – 5th International Summit on the Future of Health Privacy

von Jan Linxweiler

The 5th International Summit on the Future of Health Privacy took place in Washington, D.C., from June 3-4, 2015. The conference is a forum for practitioners from government and industry, and for academics, the media and the public to engage in constructive dialogue on the future of patient privacy. The summit was co-organised by Patient Privacy Rights, a US charitable foundation with the goal of restoring patient control over personal health information, and Georgetown Law’s O’Neill Institute for National and Global Health Law. Past guests at the summit include Peter Hustinx, EU Data Protection Supervisor and Peter Schaar, former German Data Protection Supervisor, as well as the famous privacy scholar Alan Westin.

Invited to participate in the conference for the first time this year, IRI was represented by Magdalena Góralczyk and Alan Dahi, who took part in the session “Promoting Research While Respecting Privacy: The Promise and Challenge of using Patient Healthcare Data in Research” and hosted an IRI session under the title “Health data: a bone of contention between researchers and patients? Contrasting EU vs US solutions for collection and use of health data through the examination of EURECA and MyHealthAvatar projects”.

The sessions were an excellent opportunity to present the European approach to the sharing of medical data and contrast it with the US approach ...

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